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Room № 03 · Staying Alive

Man, eff
heart disease.

Diagnosed with a disease twice my age and somehow expected to just live with it. Now I vow to reverse it. Publicly. On the record.

— Glad to be here. Working hard to remain.
Neola Husbands — portrait. Heart disease survivor diagnosed at 27 with coronary artery disease and Lipoprotein(a) of 1,700+. Founder, writer, advocate.
Neola Husbands — portrait. Diagnosed with coronary artery disease at 27 in May 2020 during the pandemic. Lipoprotein(a) of 1,700+. Founder of Neola (goneola.com), Neola Husbands Advisory (neolahusbands.com), and board member at DCI Canada. Vancouver, British Columbia.
"nobody listens to Black women in medicine" Thank GOD for a minority doctor. — the minority doctor that saved my life.
The diagnosis · May 2020

Twenty-seven.— In the middle of a pandemic.

Coronary artery disease. High risk for a heart attack within ten years. A family history that wrote the script before I got here. My mother and my grandmother both died young from heart disease. It's lineage.

And here's the part nobody tells you about how a diagnosis like this gets caught.

Vancouver General Hospital · Cardiology

Laboratory Report

PatientHusbands, N.
Age27 years
DateMay 2020
At homeTwo-year-old son
TestResultReferenceStatus
LDL CholesterolWithin range< 3.0 mmol/LOptimal
HDL CholesterolWithin range> 1.3 mmol/LOptimal
Total CholesterolWithin range< 5.2 mmol/LNormal
EKG / ECGNormal sinus rhythmNormal
Stress TestNegativeNegative
Holter MonitorNo arrhythmias24 hrNormal
Lipoprotein(a) * 1,700+ nmol/L < 75 nmol/L Critical

* Not part of the standard cardiac panel. Ordered separately.
Five times the upper limit for white populations. Three times for people of colour.

The data agreed with every physician already in the room. This patient is optimally healthy. I felt like I was wasting everyone's time. I apologized more than once for being there. We were in the middle of a global health crisis and I kept showing up anyway. Kept asking. Kept sitting in those rooms while the instruments said nothing was wrong.

The results looked fine? The doctor kept going anyway. She ordered the one test that isn't standard — the one they don't usually think to run. Lipoprotein(a). That's when she knew.

CT Angiogram · Finding

Plaque on the left anterior descending artery."Optimally healthy" → Coronary Artery Disease. At twenty-seven.

The data was fine. The data was incomplete. The only thing that saved me was a doctor who chose to listen past what the instruments were telling her. How many women don't get that doctor?

And six years later — in ambulances, in urgent care, with new physicians — I still have to convince the healthcare system that I have heart disease.

What I'm preventing

They call it the widow maker.

One heart attack is all it takes.

The Left Anterior Descending artery — the LAD — supplies most of the blood to the heart. When it clogs, the muscle starves. Fast. About 1 in 3 people die before they ever reach the hospital.

I know my last name is Husbands. But I refuse to be a widow maker.

Of those who make it to the hospital, many never fully recover. That's why it has the name. Coronary artery disease in someone my age, with my lipoprotein(a) levels, with my family history — this is the artery the lipid panel was warning about. The reason the cardiology appointments are every two weeks, not every six months.

~1 in 3Die before reaching the hospital
Left Anterior Descending artery — supplies most of the heart's blood. Where my plaque was found. Where ~1 in 3 deaths happen before reaching the hospital. Plaque deposit — what the CT scan found at 27. Accumulation along the LAD — the artery narrows. Blood flow drops. At a certain threshold, the artery occludes. This is what Praluent is preventing. Early · 20% Growing · 50% Critical · 85% LAD ARTERY "the widow maker" hover the diagram
As the last of my lineage… hell effing no.

I refuse to be the "mom that died when I was 5."

Or 6. Or 7. Or any age before a natural one.

I never saw a world without me in it. I still don't.

I became obsessed with becoming my highest self because slowing down meant feeling like I would die and leave my son with nothing but a mom that died.

Thank God for free healthcare.

Sincerely. And also — six years of convincing them I'm not fine.

LIVE
Electrodes · Stress Test

The blue glove. The leads going on. The part most people don't see and I'd never thought about. Until I had to.

Neola standing fully wired with 12-lead ECG monitor — red sports bra, electrode wires across chest
12-lead · Wired

Standing, wired, waiting for the treadmill to spin up. Twelve leads counting every beat.

Neola lying on cardiology exam table, ECG leads connected across chest
Resting ECG

On the table. Quiet baseline before they push the heart to see what it does under load.

LIVE
Treadmill · The Stress Test

The actual test. Walking, then jogging, then running — leads still on, blood-pressure cuff inflating between stages. They watch the heart fail under load. Or hold.

Neola in red sports bra drinking from a sports bottle between stress-test stages
Between Stages

Water. Catch your breath. They turn the speed up. Again.

Cardiology clinic waiting room, empty chairs, frosted glass doors
Cardiology · Waiting Room

The waiting room is the one place that reminds me I'm really not doing so great. I look to the left, to the right, in front of me — everyone is more than twice my age.

And six years later — in ambulances, in urgent care, with new physicians — I still have to convince the healthcare system that I have heart disease.

What they said.

Ten years. And six already spent.

Diagnosis
May 2020
← Now · Year 6 Window closes
May 2030

A real prognosis from a real doctor, given to a real twenty-seven-year-old woman with a child at home — during a lockdown, alone with that information. I lost my life during the pandemic. And it's been a slow crawl back to life ever since.

Where I'm at.

The numbers that wouldn't stay theoretical.

I read bloodwork the way other people read horoscopes — searching for reassurance, bracing for news. Every quarter I find out if the work is working. The data is the only honest mirror I have left. When you can't trust the body, you learn to trust the numbers — and that bargain costs you something the numbers don't measure.

27
Age at diagnosis.
Half the average.
4.0 4.0
LDL at diagnosis,
and now.
EVERY · 2 WKS
Praluent. Cardiology
between pitch decks.
BY 45
The deadline
I refuse to meet.
Sticky · party invites

If you invite me to a party and I ask who's all going to be there, I'm talking:

  • Advil.
  • Defibrillator.
  • Nearest hospital.

What do you mean you're inviting me to turn up and not be prepared if the party gets too lit?

Notes 2:47 AM
Praluent days

Taking Praluent twice a week is so predictable that I adjust my calendar based on my oncoming symptoms.

Marker · 11 PM thoughts

The worst time to have heart disease is when you're fucking high.

because — why does death taste so good?? 😩

Legal pad · doctor's office

"Awww, is your little hearty hurting? Do you want me to kiss it & make it better?" — when they damn well know it might not be heartburn.

Post-it · the freelance life

Imagine planning your sick days & you're not even employed.

Unfortunately, I can't just wear a pink ribbon and make my heart disease go away.

The real version of what it looks like when your body hands you something you didn't ask for — and you decide exactly how much room it gets.

Neola Oleta Husbands
still here

This heart has a pulse.

If you're a health brand, pharma partner, patient advocacy organization, or journalist working on diagnostic equity, cardiovascular health, or the Lp(a) conversation — let's breathe life into your project.

Check the pulse.

From the life of the partyto watching life flash
before my eyes.

There's a version of me from before. The one that came alive without watching her life flash before her eyes. I miss her. I hope to meet her again one day.

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